Jon and I went to Nick and Jill's fabulous wedding this Saturday! They reception was at Willows Lodge in Woodinville which was just beautiful! It had me thinking of little Ari since that is where Jon and I were staying the day I found out, and got to tell Jon and my mom & sis I was prego! It was so exciting! Little did we know the journey she would take us on! Back to the wedding...It turns out Jon recognized someone at the wedding from Children's Hospital! He worked in the respiratory area and helped take care of Ari while we were there when she was first born! It was so interesting to talk to someone who knew all about CDH, and all that goes with it. He now works for Children's Research involved with respiratory issues! So pretty much he's my hero! Most people i meet/talk to about CDH and Ari don't realize the severity of the birth defect. It's easy to "look" at Ari and think it's all over now, and shes perfect...but the truth is she will always have some hills to climb. It's amazing to talk to someone who knew so much about it, and her treatments, and everything. And he did say how lucky we are!!
I'm feeling "lucky" right now, I don't know if that's the right word to describe it, but I just found out another CDH baby passed away early this morning. She fought HARD for her life for almost 3 weeks. Her name is Elliott or "Elli". Once again I find it hard to imagine what her parents are going through today. Please keep them in your prayers.